Data access requests
Data that are shared with restricted access through DORIS can be requested via a data request form on SND.se, linked from the dataset’s record in Researchdata.se. This page describes the workflow for such requests and explains how the tool for managing them in DORIS is used in practice.
The organization responsible for the dataset decides whether the data can be disclosed once a request has been received. If the organization is a public authority, such a request will in most cases be considered a request for access to an official document under Swedish law. SND’s role is to forward information about incoming requests to the responsible organization, either directly through DORIS or by e-mail.
For guidance in the legal assessments made in requests for access to data, see:
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Vägledning för utlämnande av forskningsdata med personuppgifter (pdf) (Guidelines for disclosure of research data containing personal information)
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Checklista för utlämnande av forskningsdata med personuppgifter (pdf) (Checklist for disclosure of research data containing personal information)
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Bedömningsstöd vid utlämnande av forskningsdata med personuppgifter (pdf) (Aid in assessment of disclosure of research data containing personal information)
Note that all files are currently available in Swedish only.
When submitting a request for access to data, the requester fills in a web form providing their contact details and describing their intended use of the requested data. The requester may choose to submit the form while logged in or without logging in. Logged-in users can track their requests in DORIS.
The form used for submitting a data request can be viewed here: Submit request for data.
Description of the process
Who handles incoming data access requests in practice depends on where the data are stored. If the data are stored locally, the organization responsible for the data manages the requests in DORIS, assesses whether the data can be disclosed, and provides any data files to the requester. If the data are stored in SND CARE, SND manages the requests in DORIS, while the organization responsible for the data assesses the access request, and SND delivers the data files upon disclosure.
Since no organization has yet moved entirely to local storage, many cases involve a combination of data stored locally and in SND CARE. Newly deposited datasets are typically stored locally through the so-called interim solution, while older datasets are stored at SND. During this transition period, the responsible organization and SND need to collaborate to deliver datasets that are approved for disclosure.