Data with personal information in DORIS

Research data that contain personal data cannot be made openly accessible. If your research data contain personal data, they can be described and made visible through SND’s DORIS if your organization has an agreement with SND for this purpose. The organizations with such an agreement are listed below. If you belong to an organization that does not support making personal data visible in DORIS, you must ensure that the data are anonymized before you describe and share them. You can read more about managing research data containing personal data in the Handbook for data containing personal information.

When you describe research data in DORIS you must:

• Specify the level of access for the data. For data that should not be shared openly, select “Access to data is restricted” in Section 1 of the web form in DORIS (see Describe data in DORIS, step 1).
• Indicate whether the dataset contains personal data or other protected information, also under Section 1 of the form in DORIS (see Describe data in DORIS, step 1).
• If you indicate that the dataset contains personal data or other protected information, you must also specify the type of personal or protected data, and whether the data include special categories of personal data (sensitive personal data under GDPR).

Documentation files and metadata are always openly accessible in the research data catalogue and therefore must not contain personal data or other protected information. 

Sharing data with restricted access 

If you are affiliated with any of the following organizations, you may share research data containing personal data via DORIS: 

• Blekinge Institute of Technology, BTH
• Chalmers University of Technology)
• Halmstad University 
• Jönköping University
• Karlstad University
• Karolinska Institutet
• KTH Royal Institute of Technology
• Luleå University of Technology
• Malmö University
• Stockholm University
• Swedish University of Agricultural Sciences, SLU
• Södertörn University
• Umeå University
• University College Stockholm
• University of Borås
• University of Gothenburg, login needed
• University of Gävle
• University of Skövde
• Uppsala University
• Örebro University

Links provided go to each institution’s page on research data support; local pages may be in Swedish or English. 

The institutions above use different internal procedures for how data are managed when described in DORIS. Once you have started a data description in DORIS, you can send a message via the system to your institution’s local research data support team, who will guide you on how to proceed.