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LifeGene

SND-ID: ext0172-1.

Is part of collection at SND: Swedish Cohort Consortium (Cohorts.se)

Access to data via

Contact

Creator/Principal investigator(s)

Nancy Pedersen - Karolinska Institutet, Department of Medical Epidemiology and Biostatistics

Research principal

Karolinska Institutet - Department of Medical Epidemiology and Biostatistics rorId

Description

LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes. The cohort is a national cohort, with the 6 Swedish universities with medical faculties involved in the governance, and Karolinska Institutet as the host organisation.

LifeGene participants respond to an extensive, web-based questionnaire covering a wide range of health and health related measures, symptoms, lifestyle and environmental exposures. At a LifeGene test center, participants perform a number of physical tests (anthropometric measures, blood pressure, spirometry, bioimpedance) and provide blood and urine samples. Recruitment is either through postal contact of adults age 18-50 in areas close to LifeGene test centers (thus far in Alingsås, Stockholm, and Umeå), by being invited to participate by a LifeGene participant, or by spontaneous self-registration. Adult participants may invite their children or other household members to participate.

Purpose:

LifeGene is a prospective cohort study with longitudinal follow-up, the goal

... Show more..
LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes. The cohort is a national cohort, with the 6 Swedish universities with medical faculties involved in the governance, and Karolinska Institutet as the host organisation.

LifeGene participants respond to an extensive, web-based questionnaire covering a wide range of health and health related measures, symptoms, lifestyle and environmental exposures. At a LifeGene test center, participants perform a number of physical tests (anthropometric measures, blood pressure, spirometry, bioimpedance) and provide blood and urine samples. Recruitment is either through postal contact of adults age 18-50 in areas close to LifeGene test centers (thus far in Alingsås, Stockholm, and Umeå), by being invited to participate by a LifeGene participant, or by spontaneous self-registration. Adult participants may invite their children or other household members to participate.

Purpose:

LifeGene is a prospective cohort study with longitudinal follow-up, the goal of which is to collect and make available data and samples from 250,000 Swedes. Show less..
Method and outcome

Unit of analysis

Population

The total population of Sweden.

Time Method

Sampling procedure

Time period(s) investigated

2009 – Ongoing

Data format / data structure

Data collection

Data collection 1

  • Mode of collection: Computer-based observation
  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples

Data collection 2

  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples

Data collection 3

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples
... Show more..

Data collection 1

  • Mode of collection: Computer-based observation
  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples

Data collection 2

  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples

Data collection 3

  • Mode of collection: Self-administered questionnaire
  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples

Data collection 4

  • Mode of collection: Measurements and tests
  • Time period(s) for data collection: 2009–ongoing
  • Source of the data: Registers/Records/Accounts, Population group, Biological samples
Show less..
Geographic coverage

Geographic spread

Geographic description: Sweden

Administrative information

Responsible department/unit

Department of Medical Epidemiology and Biostatistics

Topic and keywords

Research area

Medical and health sciences (Standard för svensk indelning av forskningsämnen 2011)

Public health, global health, social medicine and epidemiology (Standard för svensk indelning av forskningsämnen 2011)

Health (CESSDA Topic Classification)

Keywords

Symptoms, Blood pressure, Life style, Urine specimen collection, Health, Environmental exposure, Body fat distribution, Height (physiology), Weight (physiology), Respiratory function, Blood sample, Swedish cohort consortium (scc), Cohorts.se

Publications

Almqvist C, Adami HO, Franks PW, Groop L, Ingelsson E, Kere J, Lissner L, Litton JE, Maeurer M, Michaëlsson K, Palmgren J, Pershagen G, Ploner A, Sullivan PF, Tybring G, Pedersen NL. LifeGene--a large prospective population-based study of global relevance. Eur J Epidemiol. 2011 Jan;26(1):67-77. doi: 10.1007/s10654-010-9521-x. Epub 2010 Nov 21.

If you have published anything based on these data, please notify us with a reference to your publication(s). If you are responsible for the catalogue entry, you can update the metadata/data description in DORIS.

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Is part of collection at SND