Interviews for "Living with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) – a Qualitative Study of Children’s Experiences in Sweden"

SND-ID: 2023-197. Version: 1. DOI:


Creator/Principal investigator(s)

Noam Ringer - Stockholm University, Department of Special Education orcid

Research principal

Stockholm University - Department of Special Education rorId


Transcriptions of interviews (in Swedish) where all personal information that could potentially enable identification of individuals has been removed. Seven textfiles numbered from 1-7 containing manual transcripts from interviews with children and adolescents in Sweden. Files are named Intervju1.txt, Intervju2.txt, etc. but file numbers are arbitrarily assigned and have no identifying function.

Data contains personal data


Sensitive personal data


Type of personal data

Health data


Method and outcome

Unit of analysis


Children with PANS

Time Method

Sampling procedure

The recruitment of children and adolescents diagnosed with PANS was done via advertisement on the websites of patient organizations, and in waiting rooms at child and youth medical clinics. Inclusion criteria for participation were children and youth aged 10 to 18 years, with a formal diagnosis of PANS. Participants varied in terms of the child’s age at the time of the interview as well as at the time of diagnosis, the course of the symptoms (i.e. episodic or chronic-static), the illness severity, treatment experiences, and sociocultural background. Participants also varied in what region of Sweden they lived in, as well as if they lived in rural villages or midsize or large cities. The variation in the regions of residence is relevant in the Swedish context, as every region has its own healthcare system.

Time period(s) investigated

2022 – 2022

Number of individuals/objects


Data format / data structure

Data collection
  • Mode of collection: Interview
  • Source of the data: Communications
Geographic coverage

Geographic spread

Geographic location: Sweden

Administrative information

Responsible department/unit

Department of Special Education

Ethics Review

Swedish Ethical Review Authority - Ref. 2020-06554

Topic and keywords

Noam Ringer, Carin Benjaminson & Hampus Bejnö (2023) Living with Paediatric acute-onset neuropsychiatric syndrome (PANS) – a qualitative study of Children’s experiences in Sweden, Cogent Psychology, 10:1, DOI: 10.1080/23311908.2023.2259745
URN: urn:nbn:se:su:diva-221772

If you have published anything based on these data, please notify us with a reference to your publication(s). If you are responsible for the catalogue entry, you can update the metadata/data description in DORIS.

Published: 2023-10-11
Last updated: 2023-10-19