An instrument, Next of Kin Participation in Care (NoK-PiC) with two subscales: Communication and Trust (CaT); and Collaboration in Care (CiC), are compared within groups (control and intervention groups) before and after an educational intervention. Comparisons can be done using raw scores as well as linearized scores. Individual person level significance is given.

The project implemented an educational intervention across 30 nursing homes. The intervention consisted of five 2-hour seminars addressing the knowledge and skills considered necessary to provide evidence-based palliative care in nursing homes. The content was based on fundamental principles of palliative care. The topics covered by each seminar were: 1) the palliative approach and dignified care; 2) NoK; 3) existence and dying; 4) symptom relief and 5) collaborative care.

SPSS data file with age, gender, control/intervention group, raw scores for the total scale (NoK-PiC) and for subscales (CaT and CiC) before and after an educational intervention. Linearized scores with standard errors, and individual person-level significance i

Data contains personal data

Language

English

Method and outcome

Unit of analysis

Individual/Patient

Population

Next of kin of older people in nursing homes.

Study design

Observational study

Description of study design

A pre-post non-randomised control and intervention group evaluation

Sampling procedure

Other

Consecutive

Variables

Number of individuals/objects

203

Data format / data structure

Numeric

Data collection

Mode of collection: Self-administered questionnaire
Source of the data: Research data

Geographic coverage

Geographic spread

Geographic location: Scania Province

Administrative information

Responsible department/unit

Faculty of health sciences

Ethics Review

Lund - Ref. 2015/69

Topic and keywords

Research area

Probability theory and statistics (Standard för svensk indelning av forskningsämnen 2011)

Medical and health sciences (Standard för svensk indelning av forskningsämnen 2011)

Keywords

Quantitative data, Between groups comparisons, Within groups comparisons, Individual person-level comparison

Publications

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Ahlstrom, G., Nilsen, P., Benzein, E., Behm, L., Wallerstedt, B., Persson, M., & Sandgren, A. (2018). Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol. BMC Palliative Care, 17, Article 52. https://doi.org/10.1186/s12904-018-0308-2
URN: urn:nbn:se:liu:diva-147414
DOI: https://doi.org/10.1186/s12904-018-0308-2

Westergren, A., Behm, L., Lindhardt, T., Persson, M., & Ahlström, G. (2020). Measuring next of kin’s experience of participation in the care of older people in nursing homes. PLoS ONE, 15(1). https://doi.org/10.1371/journal.pone.0228379
URN: urn:nbn:se:hkr:diva-20345
DOI: https://doi.org/10.1371/journal.pone.0228379

Published: 2020-12-16